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HANAH Foundation

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Welcome.

Hanah International Foundation directly supports initiatives on demand of parents of children with special communication needs to join them in optimizing the family situation.

For that purpose we offer the experience of an international network of regional independent experts and experienced parents that exist meanwhile from the Baltic to the Black Sea.

This network aims at sharing knowledge, skills and enthusiasm of parents, children and professionals.

Hanah International does not provide any direct financial support, equipment or other facilities other than in Hanah activities.

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Monday, 19 July 2010 22:15

Tips from a mother

Written by  Administrator
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Tips from a mother

Help your child with Down Syndrome to live up to full potential.

The discovery that your child has Down Syndrome is a daunting one. Believe me, thirty-five years ago, at the tender age of twenty, I was daunted.

But after the shock and awe, after the ‘why me,’ and having to disappoint your relatives, what you need is information. What Down Syndrome is, the effects and symptoms become tiresome and you start to ask the age-old question: what can I do to help my child? Below find simple strategies to help your child with Down Syndrome live up to a full potential, and, believe me, there is a lot of potential.

1) Love.

2) Stimulation. Part of the deffenition of mental retardation is ‘an external locus of control.’ That means that the individual is not going to have a lot of wild ideas on her own. You have to present your child with a variety of sights, sounds and sensations to capture her interest. But! If my daughter has an external locus of control, how did she decide to practice cutting shapes by snipping triangles, squares and rectangles on my six-foot rubber tree plant?

3) Expect the unexpected. Just because they tell you that a child with Down Syndrome will just sit there like a lump until you provide them with stimulation doesn’t mean she’ll sit there like a lump until you provide stimulation. Like it surprised me how quickly my daughter decided to scramble a half dozen eggs in a colander when my back was turned.

4) Get out and about. Take your baby everywhere. Provide constant commentary and questions on everything. If your child with Down Syndrome does not have the muscular control to climb the monkey bars, do it for her, manipulate those little hands and feet until she gets the hang of it. Take long walks, meet people, go on trips – present the world to your child and your child to the world.

5) Turn off the TV. Learning is a multisensory event. Sitting in front of the television makes a child passive and inhibits the development of eye muscles as well as language.

6) Read early. Read often. A child with Down Syndrome, often passive by nature, will enjoy spending lots of time snuggled in your lap poring over picture books, catalogues and magazines. The movement of eyes across the page and the understanding that those squiggles and blocks of color represent something in the real world enrich any child’s development and encourage the skills needed for reading.

7) Repetition. All children learn by repetition. Some just need a little more than others.

8) Music. A variety of music presents different sensations and offers a child a deeper view of the world. Music can be soothing or energizing. It enhances the development of motor skills through dance. Dancing will help your child’s balance, coordination, stamina and strength. My daughter has accumulated quite a lot of junk from winning all those dance contests at the ARC!

9) Talk. Talk. Talk. Language is civilization. Language allows us to understand the world and adapt to it my means of communication. Language allows a child to become a fully realized individual with ability to make his/her wishes known, ask questions and state observations.

10) From day 1 push that tongue in. children with Down Syndrome have poor muscle control evidenced by that tongue hanging out. It doesn’t look good. A tongue hanging out interferes with the ability to speak. Wash your hands and push that tongue in. Eventually, your child will get the idea.

Of course, good wholesome, fresh food and supplemental vitamins are especially important for the child with Downs. Finding a doctor who is experienced with Down syndrome may be a bit difficult but well worth the search.

So, quit worrying and get on with life. Having a child with Down Syndrome provides you the opportunity to really make a difference for your baby, yourself, your family and everyone you meet.

Administrator

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